Consent to use a patient’s personal confidential information should be explicitly sought at six months post-stroke.
There are two stages to asking for consent from competent participants:
- Informing: Giving the participant full information about what SSNAP is and what they are consenting to. The participant should be given time to reflect on the information and ask questions, they should be under no pressure to respond immediately. Click here to view our downloadable patient information sheets.
- Obtaining consent: Consent should be obtained before the record is entered on to SSNAP (prospectively). Consent for SSNAP can be obtained verbally or in written form. Click here to view our downloadable consent forms.
If the patient is not able to provide consent themselves, then their relative or carer can provide this and you can indicate that they consented.
If the patient refuses consent at the six month assessment stage, please select ‘No, patient refused consent’ for 8.1.5. All patient identifiable information will be wiped from the SSNAP webtool.
If a patient refuses consent, non-identifiable data will continue to be held on the database as it is important for the purpose of SSNAP to analyse all data without selection bias.